The lived experience of diagnosis delivery in Motor Neurone Disease: a sociological-phenomenological study

Pavey, Amanda, Allen-Collinson, Jacquelyn and Pavey, Toby (2013) The lived experience of diagnosis delivery in Motor Neurone Disease: a sociological-phenomenological study. Sociological Research Online, 18 (2). ISSN 1360-7804

Full content URL:

Full text not available from this repository.

Item Type:Article
Item Status:Live Archive


Relatively few previous studies of individuals receiving a diagnosis of Motor Neurone Disease within the UK health care system have employed qualitative approaches to examine the diagnostic journey from a patient perspective. A qualitative sociological study was undertaken, involving interviews with 42 participants diagnosed with MND, to provide insight into their experiences of undergoing testing and receiving a diagnosis. Adopting a sociological-phenomenological perspective, this article examines key themes that emerged from participant accounts surrounding the lived experience of the diagnostic journey. The key themes that emerged were: The diagnostic quest; living with uncertainty; hearing bad news; communication difficulties; and a reified body of medical interest.
In general, doctor-patient communication both at and post- diagnosis was experienced as highly stressful, distressing and profoundly upsetting. Participants reported such distress as being due to the mode of delivery and communication strategies used by health professionals. We therefore suggest that professional training needs to emphasize the importance to health professionals of fostering greater levels of tact, sensitivity and empathy towards patients diagnosed with devastating, life-limiting illnesses such as MND.

Keywords: Motor Neurone Disease (MND); diagnosis delivery; sociological-phenomenology; lived experience; patient perspective.

Keywords:Motor Neurone Disease MND, Phenomenology, Sociological phenomenology, Lived experience, Diagnosis delivery
Subjects:L Social studies > L300 Sociology
Divisions:College of Social Science > School of Sport and Exercise Science
ID Code:7808
Deposited On:05 Mar 2013 13:25

Repository Staff Only: item control page