‘Shared Lives®: Cancer’ an innovative digital health tool to support people affected by cancer by making lived experience research publicly accessible.

Kane, Ros, Green, Heidi, Nelson, David , Cooke, Samuel, McPeake, Kathie and Gussy, Mark (2022) ‘Shared Lives®: Cancer’ an innovative digital health tool to support people affected by cancer by making lived experience research publicly accessible. In: IPOS 2022, 29th August - 1st September, Toronto, Canada.

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‘Shared Lives®: Cancer’ an innovative digital health tool to support people affected by cancer by making lived experience research publicly accessible.
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Abstract

Objectives/purpose: Shared Lives Cancer (SL:C) is a new and innovative online resource, aiming to support people affected by cancer by making qualitative lived experience research publicly accessible. SL:C is presented as a dynamic, searchable database of quotes and stories concerning individuals’ lived cancer experience. This presentation will feature an overview of the development of SL:C as well as a live demo.

Methods: SL:C is populated utilising existing qualitative data collected from research covering a range of ages, genders, cancer types, treatment type, as well as, from informal carers. Extracted data is collated, analysed, and thematically coded before being presented as searchable quotes by a range of themes and keywords. The resource also hosts stories that provide a narrative overview of a person’s cancer experience.

Results: Coding resulted in the identification of 870 unique quotes that are searchable by 40 broad themes and over 70 keywords. Results can be filtered by age, gender and cancer type and searched by keywords. For example, a search using the theme ‘medication’ would retrieve all quotes associated with the theme ‘medication’, whilst a search for a specific medication as a keyword would retrieve quotes associated with the named medication. The site currently hosts 15 patient stories.

Conclusion and clinical implications: SL:C has the potential to positively influence those affected by cancer by providing a unique user-friendly support platform whilst also informing cancer healthcare professionals and facilitating academic collaboration. Pilot and evaluation research are currently being designed to evaluate and improve website accessibility, usability, and functionality of SL:C, before its launch later in 2022.

Keywords:cancer survivorship, living with cancer, Digital Health, qualitative research, Research dissemination, web-based support, Shared Lives
Subjects:B Subjects allied to Medicine > B990 Subjects Allied to Medicine not elsewhere classified
A Medicine and Dentistry > A900 Others in Medicine and Dentistry
G Mathematical and Computer Sciences > G920 Others in Computing Sciences
A Medicine and Dentistry > A990 Medicine and Dentistry not elsewhere classified
Divisions:College of Social Science > Lincoln International Institute for Rural Health
College of Social Science > School of Health & Social Care
ID Code:51991
Deposited On:04 Oct 2022 13:28

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