Abstract

Background
People affected by cancer (PABC) can have a range of social care needs at different stages of the patient pathway: emotional, practical, personal, as well as information and financial needs. The objectives of the study were (1) to examine the social care needs of PABC in Lincolnshire and (2) to provide recommendations regarding future service development and delivery.

Method
Qualitative study utilising in-depth interviews with PABC (n=10) across Lincolnshire. Data were analysed based on the Framework Method of Qualitative data analysis (Ritchie and Spencer, 1994).

Results
All participants reported the need for emotional support (in particular around the initial diagnosis and surrounding period). The need for practical and personal care support varied amongst those we interviewed with this often being dependent on the type and frequency of treatment. For most, family and friends shouldered the burden of this as opposed to social services. Furthermore, expenses were also attributed to friends and family of the patient. We received reports of negative experiences when dealing with the Department of Work & Pensions (DWP) and claiming for Employment Support Allowance (ESA). Information and advice was important throughout the cancer journey; the preferred format (physical or online) was influenced by personal preference.

Conclusion
Final findings and recommendations will be available in late 2015.

Acknowledgements
We would like to express our gratitude to the participants who shared their experiences with us. Furthermore, we are grateful to Macmillan Cancer Support, Bromhead Medical Charity & University of Lincoln for funding this research.