Self-Help Acceptance and Commitment Therapy for Carers of People with Multiple Sclerosis: A Feasibility Randomised Controlled Trial

Potter, Kristy-Jane, Moghaddam, Nima, Evangelou, Nikos , Mhizha-Murira, Jacqueline and Das Nair, Roshan (2020) Self-Help Acceptance and Commitment Therapy for Carers of People with Multiple Sclerosis: A Feasibility Randomised Controlled Trial. Journal of Clinical Psychology in Medical Settings . ISSN 1068-9583

Full content URL: https://doi.org/10.1007/s10880-020-09711-x

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Self-Help Acceptance and Commitment Therapy for Carers of People with Multiple Sclerosis: A Feasibility Randomised Controlled Trial
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Abstract

Introduction: Acceptance and Commitment Therapy (ACT) is an established psychological therapy, but its effectiveness for carers of people with Multiple Sclerosis experiencing carer-related strain has not been established. This study assessed the acceptability and feasibility of conducting a randomised controlled trial comparing ACT self-help, telephone-supported ACT self-help, and usual care.

Methods: We describe a mixed-method, parallel three-armed feasibility randomised controlled trial. Participants were carers (i.e. caregivers) of people with multiple sclerosis. The self-help group received an ACT self-help text (covered over eight weeks), the enhanced self-help group additionally received weekly telephone support. All participants completed questionnaires at baseline, three-months, and six-months post-randomisation, assessing carer strain, health-related quality of life, and ACT-related processes. A sample of participants were also interviewed.

Results: Twenty-four carers were randomised. Participants found the study procedures to be acceptable, but highlighted difficulties with the self-help text and timing of the intervention. An exploratory, group-level analysis indicated effectiveness for the enhanced self-help group on carer strain (consistent across both follow-ups), with convergent qualitative reports to support this.

Discussion: A full trial of ACT-based, telephone-supported self-help is warranted, including both the self-help and enhanced self-help design, following significant adaptions to the self-help itself. An internal pilot would, therefore, be recommended to further assess the feasibility after changes are incorporated.

Keywords:multiple sclerosis, Informal caregivers, Acceptance and Commitment Therapy, feasibility study
Subjects:C Biological Sciences > C840 Clinical Psychology
Divisions:College of Social Science > School of Psychology
ID Code:40126
Deposited On:12 Mar 2020 12:57

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