Planning for the future: Exploring the experiences of older carers of adult children with a learning disability

Deville, Jane and Davies, Helen and Kane, Ros and Nelson, David and Mansfield, Paul (2019) Planning for the future: Exploring the experiences of older carers of adult children with a learning disability. British Journal of Learning Disabilities . ISSN 1354-4187

Full content URL: https://doi.org/10.1111/bld.12279

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Planning for the future: Exploring the experiences of older carers of adult children with a learning disability
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Abstract

Background: There are a significant number of adults with a learning disability who live with and are cared for by their parents. There is a pressing need for interventions to support older parent carers with their role and to plan for a time when they can no longer continue caring. This article reports on the experiences of older parent carers who have been in receipt of an intervention to support future planning, in a rural part of England, delivered to older carers of their adult children with learning disabilities.

Methods: Semi‐structured carer interviews (n = 12) were conducted and analysed thematically.

Results: Four themes were identified (a) emotional needs of carer, (b) future planning, (c) accessing other services and resources and (d) links to adult care services. Carers welcomed the flexibility of the intervention and its focus on support for them, relieving their sense of isolation.

Conclusions: The research highlights the unmet needs of older family carers and shows the value of tailored support from a carer perspective. The findings have im- plications for national social care provision delivered to carers of adult children with learning disabilities in rural areas.

Keywords:care management, disabled children, family support, parenting, qualitative research, Health and social care
Subjects:L Social studies > L520 Child Care
L Social studies > L510 Health & Welfare
L Social studies > L431 Health Policy
L Social studies > L500 Social Work
Divisions:College of Social Science > School of Health & Social Care
Lincoln International Business School
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ID Code:36142
Deposited On:11 Jun 2019 08:55

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