Carers of people affected by cancer and other long-term conditions at end of life: a qualitative study of providing a bespoke package of support in a rural setting

Nelson, D. and Mansfield, P. and Kane, R. (2017) Carers of people affected by cancer and other long-term conditions at end of life: a qualitative study of providing a bespoke package of support in a rural setting. Palliative Medicine, 31 (2). pp. 158-161. ISSN 0269-2163

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Abstract

Background: A UK charity, Macmillan Cancer Support has funded a local intervention, whereby carers of people affected by cancer and other long-term conditions at end of life are offered a bespoke package of support.
Aim: This short report describes the qualitative experiences of carers in receipt of the intervention.
Design: Qualitative research utilising in-depth interviews. Discussions were digitally recorded and transcribed verbatim. Data were analysed using thematic analysis.
Setting/participants: Participants were carers (n = 10) in receipt of the intervention. Interviews were conducted between August and September 2014 in Lincolnshire (England).
Results: Five themes from the interviews were identified: (1) Awareness and advertising, (2) focus of support on the carer, (3) modes of communication, (4) personal attributes and skills of the support worker (5) streamlining and signposting.
Conclusion: The intervention was successful within a social care setting. The participants had no overtly negative opinions on the service in its current format and all held it in high regard. Carers felt a sense of reassurance from having background support and maintained that their situation would have been worse had this support not been there.

Keywords:carer, caregiver, social support, end of life, palliative care, qualitative research, cancer, Lincolnshire
Subjects:B Subjects allied to Medicine > B990 Subjects Allied to Medicine not elsewhere classified
L Social studies > L510 Health & Welfare
Divisions:College of Social Science > School of Health & Social Care
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ID Code:23126
Deposited On:12 May 2016 11:57

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